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09-02-2023, 08:09 AM | #61 | ||
BANNED
Join Date: Jul 2012
Posts: 2,886
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I did hear the term "breakthrough pain relief" , am going back there today will ask for some specifics and get back to you mate.
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09-02-2023, 09:57 AM | #62 | ||
DIY Tragic
Join Date: Apr 2018
Location: Sydney, more than not. I hate it.
Posts: 22,366
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(Digressions are below the asterisks.)
After a further consultation, this doctor wants an MRI, then specialist, and for now - no further injections, no physiotherapy, no chiropractic. I’m disappointed in the exclusion of what I’d have thought to be allied services but will go with it for now - they had no objection to self-directed everyday exercises like walking or cycling. Pain is a low enough level that it can presently be self-managed with rest and OTC pharmaceuticals, but a high enough level to impact on quality of life, including how one engages with (and contributes to) the community. I feel it might be diminishing slightly again but too early for calling. ********Digression 1: Highlight of injections was definitely the Greek technician. She told me a great story of how their fridge broke down on 23rd December, just after they’d loaded in all their food for extended family at Christmas. Her husband worked out how to repair it from YT, mission saved! I really liked the story because it involved not just Mediterraneans, food and practical thriftiness - but you could tell from how this woman spoke of it all, that her husband really was her soulmate. It’s nice to see genuine happiness in life. Digression 2: “RS”, an acquaintance, recently died. I wouldn’t strictly call him a mentor but he led an exemplary life (to me) that balanced work, health and family. At 78, an unexpected heart attack after dinner was the end. While this event might sound sad, I don’t believe he wasted much time in all those years and never knew of a single person who disliked him. An inspiration to make the next 25 years count, which is why I’m keen - if not impatient! - to resolve issues like the core of this thread… |
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09-02-2023, 04:25 PM | #63 | ||
Rob
Join Date: Sep 2006
Location: Woodcroft S.A.
Posts: 21,659
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You're misunderstanding possibly. You mentioned that concoction worked for you so I was simply pointing out that a similar concoction is readily available. I wasn't trying to imply that's what the hospital gave you.
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12-02-2023, 02:16 AM | #64 | ||
DIY Tragic
Join Date: Apr 2018
Location: Sydney, more than not. I hate it.
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Returning to the original issue, a good friend’s brother is a pain management specialist in the UK. He looked at the information I’d been given about what’s going on, and said the basic affliction is something called “spinal stenosis”. Coupled with his comments (opinions, I suppose, to be accurate) that surgical intervention often had a fairly limited duration of relief and it was best to focus on core strength plus not overdoing it…
I hadn’t wanted to hassle this fellow too much as he’s juggling a lot across two continents, but honestly felt I got more out of a brief discussion than the last three GP consultations. |
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22-02-2023, 03:11 PM | #65 | |||
Aluminum Falcon pilot
Join Date: Jul 2012
Location: Dark Sky Park
Posts: 3,673
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Quote:
Personally, I think it's a drug best avoided. It is the only thing I've ever taken that has such serious yet ignored side effects. For me, I became "scary" according to my ex. As in, he was concerned I might do him a permanent damage. I could have too, and it wouldn't have bothered me. I am not allowed to take them, and gabapentin is much the same. Severe mood imbalance is a known side effect that no doctor who has tried to give it to me has acknowledged, save for the original doc. It is also the only one that caused me to make a serious error while driving. Both times it was on a private drive at low speed, so lucky no harm done. FWIW, the standard pain relief Emergency gives is 1 endone, 1 nurofen & 1 panadol.
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13-03-2023, 10:51 PM | #66 | ||
Aluminum Falcon pilot
Join Date: Jul 2012
Location: Dark Sky Park
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Hope you're going OK with it all Mr CB
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13-03-2023, 11:22 PM | #67 | ||
DIY Tragic
Join Date: Apr 2018
Location: Sydney, more than not. I hate it.
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Mostly OK for now, thanks - hope your officially instructed rest phase is drawing to a close with some improvement.
I am trying really hard to not overdo things - which is difficult when you love to work and have been forcibly laid up a number of weeks. And the shop apprentice has just sidelined himself with a sliced artery in his leg, playing the fool with his mates. So there’s more mechanical work on the table than expected. Plus this sting in Summer’s tail; it’s super easy to get cooked working outside at present - hydration is a constant battle. Reflecting on this saga earlier today, there’s unsettlingly clear memory of the needle grating slightly on bone as it was inserted for the second round. That’s lingered more strongly than memory of actual pain; I’m amazed at how the mind can brush it aside. The MRI is yet to be done, wanting to tick a couple of work goals off beforehand. That’s probably a bit silly (risky) but it’s for my sanity in the shorter term, which can be said now I’ve “outed” myself as a workaholic. |
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14-03-2023, 07:21 AM | #68 | |||
Al
Join Date: Feb 2015
Location: South Aus.
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Quote:
Obviously wouldnt recommend it! |
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17-03-2023, 10:35 AM | #69 | |||
Aluminum Falcon pilot
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Location: Dark Sky Park
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Quote:
Thanks The enforced rest is over but has been replaced with a new one. Currently undergoing a Spinal Cord Stimulator trial for 2 weeks. Ex is calling me Robocop lol
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17-03-2023, 12:59 PM | #70 | ||
Al
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02-04-2023, 10:30 AM | #71 | ||
Aluminum Falcon pilot
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Location: Dark Sky Park
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So, a 1 week trial became a 2 week trial as they wanted to trial a different device after the 1st week.
The 2 work differently, and am leaning towards device 2. The #1 I could occasionally feel pulsing at night, #2 pulses up to10,000 times a second so I haven't noticed it. Will never be pain free however recovery time for me is better with #2. There are a few studies claiming its placebo effect but I definitely noticed normal pain levels returning during the 36 hr window of device changeover. Will have to think hard about a permanent implant but would be nice to do stuff without struggling
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02-04-2023, 12:25 PM | #72 | ||
DIY Tragic
Join Date: Apr 2018
Location: Sydney, more than not. I hate it.
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Sounds like it’s got real potential, especially the second one. A life with less pain, that means less fatigue, so many more opportunities.
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24-04-2023, 07:33 PM | #73 | ||
Regular...with metamusal
Join Date: Oct 2009
Location: Geeeloong
Posts: 6,571
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so how are you doing Mr. Bender?
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24-04-2023, 08:01 PM | #74 | ||
DIY Tragic
Join Date: Apr 2018
Location: Sydney, more than not. I hate it.
Posts: 22,366
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Not too bad at present. Good mobility, negligible pain mostly. Remembering to lift carefully! The drawback is getting so hyped about resuming stalled jobs, that sometimes I miss out on sleep. :-/ Others might have comment, I think the shock of sudden loss in mobility at the onset is probably like a lot of traumatic events; it rocks the boat mentally.
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24-04-2023, 08:24 PM | #75 | |||
Al
Join Date: Feb 2015
Location: South Aus.
Posts: 1,839
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Quote:
Understand your dilemma over an implant.... would be good to do away with or reduce medication though. Not a good feeling losing some independence to pain either.... hate having to ask for any help.......... Good luck! |
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25-04-2023, 09:21 AM | #76 | |||
Regular...with metamusal
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Quote:
and for you - hope you are doing well |
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25-04-2023, 03:03 PM | #77 | |||
FG XR6 Ute & Sedan
Join Date: Oct 2006
Location: Bibra Lake WA
Posts: 23,395
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Quote:
I also have a lot of project sitting on hold that are creating stress and loss of sleep. I have psoriatic arthritis and its now at the point where my fingers are painful just touching something and if knock them the slightest as you do when working on cars it's agony. They have prescribes methotrexate (see https://www.drugs.com/methotrexate.html) and while I filled script I have not yet been game to start the treatment regime. There is a lot of recent research indicating it greatly increases the risk of skin cancer e.g. https://ecancer.org/en/news/22686-us...of-skin-cancer As a 69 year old close to 70 light skinned ranga that already has had a large carcinoma caused by the psoriasis sores, I am very concerned about this.But my GP an rheumatologist are convinced it will change my life. I also some other chronic health issues and past drug intolerances so I am concerned about how this drug will impact on them. Anyone else here been on methotrexate? If so, was it life changing as promised?
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25-04-2023, 03:41 PM | #78 | |||
FG XR6 Ute & Sedan
Join Date: Oct 2006
Location: Bibra Lake WA
Posts: 23,395
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As you can see it also causes some typing issues as hitting the keys hurt. Moisture in the air, be it humidity or rain, makes the psoriasis pain worse and it's raining today.
That should have read: Quote:
I have been able to defer the decision to start the methotrexate as I have had pneumonia (only mild by past episodes) and the GP agreed I should wait until I have both finished the antibiotics and recovered from the pneumonia. Back on topic Cortisone injection never ever worked for me or any of my arthritis (the are still debating if what was previously diagnosed as osteoarthritis then Rheumatoid arthritis was actually psoriatic arthritis all along) ; no notable improvement or change at all.
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regards Blue Last edited by aussiblue; 25-04-2023 at 03:48 PM. |
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25-04-2023, 07:53 PM | #79 | |||
FF.Com.Au Hardcore
Join Date: Jan 2005
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Regards Mark. Just found this in my memos Upadacitinib 15 MG Rinvoc Last edited by five 7; 25-04-2023 at 08:06 PM. |
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25-04-2023, 08:16 PM | #80 | ||||
FG XR6 Ute & Sedan
Join Date: Oct 2006
Location: Bibra Lake WA
Posts: 23,395
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Quote:
Quote:
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regards Blue |
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25-04-2023, 08:28 PM | #81 | ||
FF.Com.Au Hardcore
Join Date: Jan 2005
Posts: 1,617
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All good Blue, I've watched what she's been through over the years, not good being in pain all the time. Ask away any time mate, hope I've been some help. Cheers.
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